Oct 122014
 

An ongoing project.

As many of you know, I grumble about medical people. I’ve seen more than my share of crummy quacks.

But my internist for the last 15 years was the exception. My suffering, both physical and mental, would have been so much greater if not for him.

He died last month, and I’ve been raw with grief.

Prior to finding him in the late 90s, I’d gone through a succession of lazy judgmental doctors. I was an artist and did not hold a conventional 9-5 job. I tend to come across as a little batty to medical people. I’d been getting sicker and sicker. One doctor told me all of my gastrointestinal problems were evidence that I didn’t cope well with stress and needed to be on Prozac (it later turned out I had celiac disease). Another told me I was like “a Victorian lady.” A bit too delicate and hypochondriacal.

At the time, my throat was swollen halfway shut all of the time. I’d gone to a local allergist who’d told me it could be any one of “hundreds of things.” It was pointless to try to figure it out. But if I started having trouble breathing, I should go to the ER. And that was all he could offer me. The doctor who’d made the Victorian lady comment prescribed a heavy-duty antihistamine that I later discovered was most often meant as a sedative.

I was telling some of this to the woman who cut my hair back then. She told me she liked her doctor. He took people seriously. He’d come up here recently from LA and was now chief of staff at the local hospital. He’d help. I was skeptical. But I was also desperate. I made an appointment, expecting to, yet again, get the brushoff and be told I needed Prozac. I remember telling a friend the night before that I was about to try a new doctor. “Whatever you do,” she urged, “don’t tell this one anything about your background! You know what they’re like…” I agreed that, indeed, feigned normality was my only hope of getting unbiased care. I’d try my best.

This new doctor’s reaction to my symptoms was “Oh my God! You’ve got a serious problem! Dangerous! We need to get to the bottom of this.” He assured me he would find out what was causing the swelling and the other sick-making stuff. In the meantime, he got me on some non-sedating meds and insisted I start carrying an anaphylaxis kit, just in case.

I walked out almost in a daze. A doctor who was taking me seriously? This didn’t happen. He discovered that I was allergic to milk, something that I almost found hard to believe. I also had other food allergies. Once my allergies were discovered, the alarming swelling and the chronic eczema I’d had for years vanished.

I later saw the chief of Allergy and Immunology at a major teaching hospital. She told me I was deluded. I could not possibly have those food allergies. She would know. She ordered me to consume milk for the health of my bones. She was so adamant that I doubted my own sanity. That night I ate ice cream. And swelled up and got rather sick. I reported this later to my internist. He narrowed his eyes with disapproval. “Nothing from the udder of a cow,” he hissed while shaking a finger at me. “You really listened to that woman?!”

Around this time, I began to develop indescribable pain through my right, dominant arm and hand. It was incapacitating. As an artist, this was a career-killer. The pain spread to my other side. Other inflammatory problems blossomed. Life was not good. But I was far more fortunate than most, especially around here, in similar situations. I had a doctor who genuinely believed in easing suffering. He tried and suggested practically everything, made referrals and tried different combinations of medications. If he couldn’t cure it, he was at least going to do everything he could to keep me as functional as possible.

My internist had enormous physical challenges of his own and knew what it was like to suffer from a patient’s perspective. He was an extraordinarily empathic doctor.

Over time, he became as much a friend as my doctor. He came to my art shows and I went to his spoken word/music performances. We used to talk so much about other things — politics, usually — that I’d ask, laughing, if he’d mind if I interjected with a medical question. This, in the age of 8-minute doctor visits.

He gave me most of the pharma packaging I use for arts and crafts. Leaving an appointment, I’d sometimes feel mildly self-conscious clutching a bag full of pharma industry sales paraphernalia.

He liked to encourage artists.

He once gave me one of his own antibiotic pills from a recent hospitalization. He explained that the single pill was worth $200. I painted it gold and placed it on velvet inside a pill bottle cap. I presented it back to him at my next appointment along with a miniaturized bound copy of the annual financial report of the pharma that had produced it.

The $200 Pill

We had an unusual doctor-patient relationship.

It’s not that I agreed with everything he did or suggested. I still smile when I think of one time when we were having a shouting match because I’d disagreed with one of his recommendations. As our argument escalated, his nurse — long accustomed to his conversational style — cheerfully strolled in and, over our bickering, announced she’d forgotten to take my blood pressure. She then proceeded to do just that, smiling, as we continued to shout at each other.

The memorial gathering for Dr. David Gans was this weekend. There were so many mourners, the room overflowed to standing-room only.

True to his spirit, there was a giveaway table in back loaded with gifts for the assembled.

Everyone was invited to help themselves to the pharmaceutical industry trinkets that had been collected from his office. (For those of you not in the U.S., you probably can’t believe most of this stuff.) Tears turned to smiles as people walked off with pharma-branded mugs, clocks, toothbrush holders, mini golf clubs, toys, cup dispensers, paperweights… My husband Victor eyed me and whispered “better get some bags from the car.” I pictured Dr. Gans laughing.

New tool holder

Sep 192014
 
Confusion Reigns

I just returned from my latest medical excursion to the city. Still no answers. I’m supposed to go back next month. Why? I sometimes wonder. I guess because it beats trying to get any help from the local “specialists.” (Insert mental image of a duck. Quack! Quack!) By coincidence, just before I left, I discovered [...]

Aug 042014
 
Where Oh Where Has My Blog Gone…

[Update: Restoration of the blog has been underway. Things are not nearly as dire now as originally reported. If it still is missing things when you look at it, please try refreshing the page.] Some surprises are not very nice. If you are a regular reader, you might’ve noticed the blog is looking rather strange at the [...]

Jul 172014
 
And the Giveaway Winner is…

Everyone who left a comment on the last post! I couldn’t just pick one. I like all of you! The hard part now is picking out which big philatelic surprises to send… They’ll be mailed on Monday here in California. If I don’t know your address, I’ll be contacting you over the weekend.

Jul 092014
 
Filling Time Philatelically

Plus: A giveaway! Things have been getting “interesting” again, alas, in the dual-degenerative disease household realm. I’ll spare you the details. I haven’t been able to be in the studio much. It’s making me grumpy, and unfinished books are still sitting… unfinished. Along with other projects I @#$% want to get to. But what can one do. [...]

Jun 302014
 
Heartbreak

One day in January in 1999 I looked out the window and saw a black cat running across the yard toward the house. At that time, we had four cats, including a semi-feral stray who’d suddenly appeared a month before and had moved in with us. She was a black cat with a round and compact sort [...]

Jun 212014
 
Laminated Papers

Last month, Randi Parkhurst came to town and taught a paper embellishing class. One of her techniques involves using matte medium to laminate together two sheets of a type of translucent paper from the hardware store. We painted the papers before adhering them. Threads and other things were sandwiched in between the sheets. I’d long been [...]

May 162014
 
She's Alive!

Hmm… it seems if a gal mentions her physical maladies on her blog and then disappears for several months, some kind readers will begin to worry. Thank you to those who’ve contacted me, and apologies if I still haven’t gotten back to you! I haven’t forgotten. Yes, things caught up with me. Ours is a dual-degenerative-malady household [...]

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